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Urostomy Association

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This is a photo of Lydia Makaroff, CEO of Fight Bladder Cancer. It is the header image for a guest blog on the Urostomy Association's website entitled 'Improving information and support for people with urostomies'

Improving information and support for people with urostomies

Research from Fight Bladder Cancer sheds light on significant gaps in patient education, particularly regarding the impact of urinary diversions on sexual health. In this guest blog, Dr Lydia Makaroff, shares some of the research findings.

This is a photo of a woman sitting on a bed clutching her stomach. It is the header image of a page on the Urostomy Association's website entitled 'Managing and preventing urinary tract infections'

Managing urinary tract infections (UTIs)

This is recording of the webinar on managing urinary tract infections, for people living with a urinary diversion. It was held on 22 May 2024 by the Urostomy Association.

This is a photo of a woman researching information on her tablet. It is the header image for the 'what to expect with a urostomy' page on the Urostomy Association's website

Understanding issues that may arise with a urostomy

The idea of having a urinary diversion can be a bit daunting. You’ll be pleased to know that after an operation to form a urostomy, many people have few or no problems whatsoever. However, some do experience difficulties, and we hope that this page helps you understand some of the issues that may occur.

This is a photo of a man in front of a laptop. It is to illustrate online shopping. It is the header image of the 'Directory of Suppliers' page on the Urostomy Association website

Directory of suppliers

This directory contains a selection of items which you might find helpful in managing your urinary diversion. Please note that the Urostomy Association does not recommend individual companies or products, and inclusion in this list does imply an endorsement from us.

This is a photo of a woman looking out of the window, with a peaceful look on her face. It is the header image for the 'managing and preventing urinary tract infections' page on the Urostomy Association's website

Managing and preventing urinary tract infections (UTIs)

Following urostomy surgery, the changes in your body may leave you more susceptible to urinary tract infections (UTIs). In most cases UTIs are mild and short lived. Not everyone will get a UTI so don’t worry too much, just be mindful.

This is a photo of a woman in a head scarf being comforted by another woman standing by. It is the header image for an article on the Urostomy Association's website entitled: 'Joining Cancer52 in launching a manifesto for rare and less common cancers'

Launching rare and less common cancers manifesto

The Urostomy Association has joined with Cancer52 and others in the release of ‘The Other Half. A manifesto to transform outcomes for people with rare and less common cancers’.

This is a screenshot of a video featuring urostomate, Donna Watson, in which she describes two holidays; the first in the UK and secondly on safari much further afield.

Donna’s advice on flying with a urostomy

Donna is a UA volunteer, and a frequent traveller. As part of her volunteering, she assists in providing training for security staff at Northern Ireland's business airport. Donna recorded this video as part of the Urostomy Association's 'Travelling with a urostomy' webinar, held on 11 April 2024

This is a photo of Louise Hoolighan, Stoma Nurse Specialist at NHS Golden Jubilee in Clydebank, Glasgow. It is the header image on the Urostomy Association's website which features her 'travelling with a urostomy' presentation

Travelling advice from a stoma nurse specialist

There's lots to think about when planning to travel with a urostomy. In her presentation, Louise Hoolighan, Stoma Nurse Specialist at NHS Golden Jubilee in Clydebank, gives hints and tips for a successful holiday.

This is a photograph of Linda Trill. She is author of the 'Cruising with a urostomy' blog on the Urostomy Association website.

Cruising with a urostomy

Linda had a cystectomy in October 2023. In her blog, Linda shares how she and her husband were determined to celebrate their 60th wedding anniversary with a Rhine river cruise which involved a hotel stay, plane travel and eight nights on the boat. It was a packing challenge!

This is a photo of liquid that is a cloudy purple. It is the header image for the 'What is purple urinary bag syndrome' article on the Urostomy Association's website

Purple urinary bag syndrome

If you wake up one morning and find that the urine in your catheter or night drainage bag has suddenly turned purple it can be very alarming. In this blog, Katie Sainsbury explores the possible causes, treatments and preventions.

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