This page is for anyone who has, or is about to have, a urostomy. It explains what a urostomy is and why it may be necessary. It explores issues such as how a stoma is formed and the different types of urostomy pouches available.
Life with a urinary diversion can feel daunting. So it’s vital that people have somewhere to turn for reassurance and advice, from diagnosis to living life to the full again. We can provide that support.
Having a urinary diversion can be daunting, but our trained volunteers can provide reassuring, confidential one to one support, by telephone, face-to-face or through our branches and groups. All our volunteers are urostomates themselves, so can understand your concerns.
Regular, monthly donations are crucial because life with a urinary diversion can feel daunting. It’s vital that people have somewhere to turn for reassurance, from diagnosis to living life to the full again. We provide that support, but can only do so with kind donations.
I was diagnosed with bladder cancer in January 2020 and had the operation to remove my bladder two months later, and therefore have been an ostomate ever since. I have to say that the “waiting time” between diagnosis and operation, was very difficult and emotional. The diagnosis was such a shock to me, a normally … Read more
Make A Gift and Help Provide Hope Not everyone enjoys fundraising, and that’s perfectly fine. But you can still Help Provide Hope by making a gift. Whether it’s a one-off donation, a regular contribution, or a gift left in your Will, every act of generosity helps us continue our vital work. Regular giving: The heartbeat … Read more
I have lived with a urostomy most of my life, having had surgery when I was just four years old. I haven’t allowed my stoma to hold me back from being active – quite the reverse! I approached life with a can-do attitude. I’d look at someone and think, “I can do that too!” As … Read more
My name is Lorna. I was 16 when I was referred to a urologist as I was experiencing recurrent UTIs, and GPs struggled to discover why. When my urine test results kept coming back clear of infection and my bladder wall showed no issues on the camera, it was very hard to hear, making me … Read more
2024 was supposed to be an exciting year for me. I was turning 50 in the February, and I was embracing it! My bladder cancer diagnosis, which I received in the week of my birthday, came as a massive shock. My first instinct was to start Googling. Initially, I was quite positive because what I’d … Read more
Thank you for sharing your story. We’ll review and publish it to the story wall shortly. Back to the story wall
One of the most powerful ways you can help raise awareness is by telling your own story. Whether you live with a urostomy, internal pouch, neobladder or nephrostomy, your journey could offer comfort, reassurance, and hope to someone who is just beginning theirs. See the amazing stories urostomates have shared on our story wall.
Every journey matters. This Urology Awareness Month, we’re inviting you to take part in our Miles Of Hope challenge and help make a real difference for people living with a urinary diversion.
Whether you choose to walk, cycle, swim, row or simply count your daily steps – every mile you complete helps to raise awareness and vital funds for our work. Set your own personal target for September, and ask friends and family to sponsor your efforts.
September is Urology Awareness Month – and it’s time to take our Help Provide Hope Appeal up a level! You can get involved in one, or all, of these three powerful ways …
