This page is for anyone who has, or is about to have, a urostomy. It explains what a urostomy is and why it may be necessary. It explores issues such as how a stoma is formed and the different types of urostomy pouches available.
Life with a urinary diversion can feel daunting. So it’s vital that people have somewhere to turn for reassurance and advice, from diagnosis to living life to the full again. We can provide that support.
Having a urinary diversion can be daunting, but our trained volunteers can provide reassuring, confidential one to one support, by telephone, face-to-face or through our branches and groups. All our volunteers are urostomates themselves, so can understand your concerns.
Regular, monthly donations are crucial because life with a urinary diversion can feel daunting. It’s vital that people have somewhere to turn for reassurance, from diagnosis to living life to the full again. We provide that support, but can only do so with kind donations.
I have lived with a urostomy most of my life, having had surgery when I was just four years old. I haven’t allowed my stoma to hold me back from being active – quite the reverse! I approached life with a can-do attitude. I’d look at someone and think, “I can do that too!” As … Read more
My name is Lorna. I was 16 when I was referred to a urologist as I was experiencing recurrent UTIs, and GPs struggled to discover why. When my urine test results kept coming back clear of infection and my bladder wall showed no issues on the camera, it was very hard to hear, making me … Read more
2024 was supposed to be an exciting year for me. I was turning 50 in the February, and I was embracing it! My bladder cancer diagnosis, which I received in the week of my birthday, came as a massive shock. My first instinct was to start Googling. Initially, I was quite positive because what I’d … Read more
Thank you for sharing your story. We’ll review and publish it to the story wall shortly. Back to the story wall
One of the most powerful ways you can help raise awareness is by telling your own story. Whether you live with a urostomy, internal pouch, neobladder or nephrostomy, your journey could offer comfort, reassurance, and hope to someone who is just beginning theirs. By sharing your story, you will be: Simply share a paragraph or … Read more
Caring for the area around your stoma is crucial in preventing irritation, skin damage, bacterial or fungal infection, and other skin complications. On this information page, Lynne Bradley, Karen Totty and Louise Turner explore some of the common issues that may occur, along with essential tips for effective urostomy skin care.
Ruth, 54, had been working in the NHS for over 30 years, and never imagined she’d be navigating retirement due to ill health. In this blog, Ruth describes her bladder cancer journey and how she’s finding her rhythm again with her micro-camper, Biffy!
Not everyone requiring treatment for a damaged or diseased bladder receives a urostomy. Some may be given the option to have an internal pouch, often called a Mitrofanoff or continent urinary diversion. Read on to explore what to expect before and after surgery to form an internal pouch.
Paul Weaver felt like a fit and healthy 68 year old, but was knocked sideways when he received a bladder cancer diagnosis in July 2023. In this blog, Paul describes how he came through the worst, and took up his beloved sports again.
