News

Jun62019

Understanding the challenges and expectations of patients with stomas

Do you live in any of the following counties? Bedfordshire, Cambridgeshire, Essex, Hertfordshire, Norfolk, Suffolk. If you do, please see below:

The East of England Collaborative Procurement Hub is an NHS organisation which supports and assists NHS customers in the East of England including Sustainability and Transformation Partnerships, Acute Trusts, Mental Health Trusts, Clinical Commissioning Groups and Ambulance Trusts in delivering effective care pathways and ensuring value for money goods and services throughout collaborative purchasing.

The purpose of this survey is to gain a better understanding of the challenges and expectations of patients with stomas to inform a regional strategy on improving Stoma Care Pathways.

We are inviting you to take part in this survey as we value your experience and thoughts; please be as honest as you can in your feedback. The information collected from the survey is anonymous.

The survey link is here: https://www.surveymonkey.co.uk/r/SMPR56D

If you would prefer to submit a paper survey rather than completing a survey online via Survey Monkey please contact Jill Kettle email: [email protected] or mobile telephone number: 07983 339010, and we will arrange this for you.

Dec212017

Exciting new opportunities for people affected by cancer to shape services

There are 4 exciting new opportunities for people affected by cancer in to be involved with the University College London Hospital Cancer Collaborative, which is part of the NHS Cancer Vanguard. These are exciting opportunities for patients and carers to shape NHS services and make a difference in north and east London and west Essex.

To be eligible, you (or the person you care for) must have received treatment at one of the NHS Trusts in the area covered, see map at https://www.uclh.nhs.uk/OurServices/ServiceA-Z/Cancer/NCV/Pages/ccmap.aspx.

Current involvement opportunities
The involvement opportunities for people affected by cancer are:

1. Being a patient representative on a Pathway Board or Expert Reference Group – deadline 28 January

2. Joining our Patient Experience and User Involvement Steering Group – deadline 28 January

3. Joining a Quality of Life Pilot Steering Group – deadline 22 January

4. Joining a Multidisciplinary Diagnostic Centre (MDC) Steering Group – deadline 22 January

Full information about each of these opportunities is available at https://www.uclh.nhs.uk/OurServices/ServiceA-Z/Cancer/NCV/Pages/Gettinginvolvedwithcancer.aspx.

We are especially keen to hear from people with connections to other cancer networks and community groups, who can offer a broad perspective.

Please contact [email protected] or call 07950 960 159 or 020 3447 2779. You can also make contact about joining the wider Patient and Carer Network at any time.