For new urostomates, returning to work can feel like a daunting prospect. The thought of managing your stoma in a professional setting may bring up concerns about comfort, privacy and confidence. But rest assured – with some preparation and the right support, most people with a urostomy find their transition back to work is a smooth one.
Remember that you have the right to a supportive work environment that allows you to thrive.
Follow our practical tips to help you navigate this next stage of your recovery.
Give yourself time to heal
One of the most important aspects of returning to work is ensuring that you are physically and emotionally ready. Recovery times vary depending on the type of surgery you’ve had, but most people need at least eight weeks before considering going back. Seek advice from your stoma care nurse about when it is safe for you to return to your job, and don’t rush yourself. Going back too soon can lead to unnecessary stress and discomfort.
Communicate with your employer
Begin by discussing your situation with your employer or HR department. You may have already discussed the time off required for your surgery so they should be prepared for the conversation when you are ready to return.
This discussion doesn’t mean you have to disclose intimate details unless you feel comfortable doing so. But sharing the fact that you have a medical condition that requires some adaptations can help create a supportive environment.
Keeping lines of communication open can help your employer understand your needs and make necessary adjustments. Most employers are happy to help wherever they can.
Adjustments could include:
- A phased return to work, working part time and building up your hours gradually
- Taking breaks when needed
- Adjustments to your workload, if necessary
- The option to work from home some of the time.
Know your rights
Employers must make reasonable adjustments to ensure workers with disabilities, or physical or mental health conditions, are not substantially disadvantaged when doing their jobs.
For more information, visit www.gov.uk/reasonable-adjustments-for-disabled-workers.
Plan for your work environment
Different jobs require different levels of physical activity and access to facilities. Consider the following factors:
Office jobs: If you work in an office, ensure that you have easy access to toilet facilities, and a comfortable chair to minimise strain on your abdomen.
Physical jobs: If your job involves lifting, bending or other physical tasks, you may need to discuss modified duties or consider wearing a supportive stoma belt for extra security.
Jobs with long hours or travel: If your work involves travel or extended periods away from home, plan ahead by carrying extra supplies and identifying toilet access in advance.
Be prepared
For peace of mind, plan your workday with your stoma care routine factored in. Make sure you have enough supplies on hand, including stoma bags, wipes, disposable bags and any necessary medication.
Packing a small kit that you can discreetly carry with you can help you manage any unexpected situations.
Talk to trusted colleagues
Sharing information about your stoma surgery is a personal choice. No one at work needs to know about your urostomy if you don’t want them to. If you wish to tell some of your co-workers, decide who you wish to tell and how much you want them to know.
They may have realised you have been off work and may offer support if you need to step away for a moment or if you experience any issues. Having someone who understands your situation can help ease any anxiety you may be feeling.
Factor in time management
Managing your time at work is important, whatever your job happens to be. Plan your day to accommodate your stoma care routine without compromising your work responsibilities. This might involve prioritising tasks, breaking your day into focused work periods, and taking breaks strategically.
Dress for comfort and confidence
Many people worry about how their clothing will fit after stoma surgery. Fortunately, there are plenty of options that allow you to feel both comfortable and professional.
Some tips include:
- High-waisted or loose-fitting trousers to avoid pressure on your stoma
- Layered outfits to help you feel more secure
- Supportive underwear or stoma wraps to keep everything in place discreetly
- Avoiding tight belts or waistbands that could interfere with your stoma bag.
Be prepared for questions
Colleagues may notice your absence from work, or the changes in your work environment, and they might even notice when you take extra breaks. Be prepared to handle questions if they arise. You can decide how much information to share, but educating others about stomas and your needs can promote understanding and reduce any potential stigma.
Practise self-care and manage stress
Returning to work is a significant milestone, and it’s normal to feel a mix of emotions. Take things one step at a time and prioritise your well-being by:
- Taking short breaks if you start feeling overwhelmed
- Practising relaxation techniques, such as deep breathing or mindfulness
- Seeking support from colleagues, friends, or a professional counsellor if needed.
Keep in touch
Stay in touch with your employer or HR department about how the adaptations are working for you, and do let them know if further adjustments are needed.
The Health and Safety Executive’s website has lots of practical examples of actions taken by employers to support workers with a range of disabilities and health conditions.
Confidence is the key
Remember, having a urostomy doesn’t define you or your abilities. Embrace your uniqueness and feel good about the challenges you’ve overcome. The more confident you are, the more comfortable you’ll feel navigating workplace situations.
“Everyone needs enough time off work to recover well after their surgery, but too much of it can stand in the way of you getting back to normal. In fact, staying off for too long can lead to feelings of isolation and depression. It is important to be guided by the advice of your stoma care nurse and to speak to your manager, and occupational health – if this resource is available with your employer – about the support you’ll need to help you make the transition back to work.
When you’re ready to return, remember to build up gradually. Start by doing some of the things you’d normally do and add more step by step. It is normal that initially when increasing your activities, you may feel more tired than usual. This will become easier over time and the tiredness will reduce. Try to arrange regular welfare catch-ups with your manager too, so that they know how things are progressing and what adjustments you may require as time progresses.”
Edel Greenwood
RN BA BSc (Hons) SCPHN-OH
Occupational Health and Well-being Manager
