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Cancer 51 Patient Survey

Cancer52 is a charity and an alliance of patient groups and charities that represent those with rare and less common cancers. You can find out more at

The organisation is running a survey of people with rare and less common cancers to find out more about their experiences during the coronavirus pandemic. This is the second survey they have run since the onset of coronavirus. The first was in the summer of 2020 and they want to understand whether things are improving for people with rare or less common cancer especially during this second wave.

Once the survey has finished, Cancer52 will share a full summary of results with its charity members.

The survey examines topics such as treatment, testing, and vulnerable groups. Cancer52 used the results from the first patient survey in discussion with the NHS and the Government to push for the best possible care and treatment for people with rare and less common cancers in all circumstances, and will do the same again with this second survey.

Answers are anonymous and Cancer52 will not ask for name or contact details, although you can opt in at the end of the survey to stay in touch with Cancer52.

Sharing the data with relevant member charities

If Cancer52 receives responses from 20 people or more with the same type of cancer, Cancer52 will share the data collected in this survey on that type of cancer only with the relevant Cancer52 member charity so that they can understand how the pandemic is affecting the specific groups of people they help.

The data shared will be non-identifiable. Cancer52 are not collecting names or contact details in this survey. You can view Cancer52 members here. Cancer52 will not share the data with any other organisations unless legally required to do so. You can read more about Cancer52’s privacy policy here.